I hope you had a happy Thanksgiving. We were grateful for the beautiful weather for our outdoor, safely distanced, masked-except-when-eating meal with Carl’s family. It is odd to write “Carl’s family” when everyone is now my family too, but that tells you the connection of origin. Amy wanted an appropriate outfit so she cut leaves out of construction paper and taped them to herself since real leaves weren’t sticking to the tape.
Sarah is a sparkly, passionate, stubborn child of 17. She has developmental delays and autism. When she was 4 I decided to run a Son-Rise Program, calling it Sarah-Rise. She wasn’t speaking or eating well or potty trained. Eye contact was fleeting, she didn’t play games or play imaginatively. She couldn’t read or write. All of that has changed. I started writing weekly updates so that people could follow our journey.
Sunday, November 29, 2020
November 29: Thanksgiving, Being Together, and Mice
Sunday, November 22, 2020
November 22: Piano Recital and Better Mornings
Last Sunday Sarah had her first virtual piano recital. She has had recitals before, but they were all in person. She wore her musical note shirt, shorts, and scarf for the occasion and she did a beautiful job playing her pieces. Carl helped with the zoom while Amy and I stayed upstairs so we wouldn’t distract Sarah, but we still dressed in fancy clothes for the occasion.
Sunday, November 15, 2020
November 15: Magic Academy, Waiting, and Progress
Each weekday morning Amy got ready for Magic Academy and some days Sarah joined her for the bus ride on our porch swing or for the walk (fly?) around the block to get to school. Each weekday morning Sarah also spent some time whining, screaming, and crying for Anna to arrive. Sometimes I handled it calmly and supportively. Other times I didn't. We have made an adjustment to the Thursday timing which used to be 10-6. From now on, until I finish teaching my Thursday afternoon class, it will be 9-5. Waiting until 10 was just interminable, but waiting until 9 will match the other days, and at the end of the day Sarah doesn’t seem to mind saying goodbye to Anna and finding other things to do.
Sunday, November 8, 2020
November 8: The Election and Sarah-Rise wonderfulness
I spent much of my time the past week hitting “refresh” on my election update page. I am beyond relieved that Biden and Harris won. Tears ran down my cheeks as I listened to Harris and realized what an incredible moment in time this is. I feel like I can breathe again and that the trauma that began 4 years ago can begin to heal. It baffles me how the people on either side of the election just cannot fathom the other’s viewpoint. It is akin to the dress from years ago that people saw as white/gold or blue/black. How can people see one object so differently and absolutely? I admit that my most difficult moments with Sarah often happen when she just doesn’t make sense to me with her lack of reason. We yell and scream at each other at the top of our lungs (sometimes). But then we always return to snuggling and remembering we love each other. I sincerely hope that the tensions that have had so many people so tightly wound and wounded can begin to ease now that we will have someone in charge of the country who does not encourage divisiveness and derision. I have had glimmers of understanding that somehow the people who supported the person I didn’t vote for simply could look past the lies and atrocious behavior, seeking the policy changes. That understanding helps things seem like normal politics with normal disagreements, so I can begin to fathom the divide a tiny bit.
Sunday, November 1, 2020
November 1: Halloween and Fork Insights
For Halloween Sarah was a Musical Note House (the house from Goodnight Moon) with a door that opened and closed. Anna was also a Musical Note House. Sarah refused to put on her costume until Anna arrived and then she promptly donned her cardboard box and cardboard roof hat. Amy was Dory the Witch and I was the Big Witch; Olivia was their cat Gink and she already had the necessary black fur. Carl was a Covid-19 vaccine. Halloween was wonderful. The kids went trick-or-treating with Anna, all wearing masks, while Carl and I stayed at home to slide candy down the candy slide. Evidently, Sarah loved walking around as a house and delightedly announced, “I’m a house!” at each stop. After trick-or-treating we all had a warm dinner and then Carl and I went to an outdoor, socially-distanced, masked party while Anna stayed to tell ghost stories with the kids and get them to bed. Amy had such a fun day that she is having a hard time today dealing with the feelings of disappointment that Halloween is over.
Sarah and I continue to do daily rounds of "tick-tock-tick-tock goes the very big clock…” with me moving her legs or with her sitting on my lap and me rocking us both back and forth. We also continue our snuggle times with saying “tiny tiny tiny, shiny shiny shiny” and her other favorite phrases. She often gives me kisses on the head or nose. With Anna, Sarah has been singing “hickory dickory dock” while Anna adjusts the hands of a learning clock so Sarah can practice telling time. Sc often draws pictures during her SR time, following the dictations of Sarah and Amy. This week I put the pictures in protective pages in a binder and Sarah loves this new book. The most recent pages were delivered last night and included several pictures of mice with “hickory dickory dock” and then the mice climb different objects and have different rhyming responses. I love all of this. There are so many educational frameworks that ask kids to behave according to what their age peers typically do rather than meeting them exactly where they are. I love that Sarah is interested in revisiting the rhymes and movements she experienced as a baby and toddler. In my mind, this allows her to process things that maybe she wasn’t ready to process in her younger years.
Amy had her first in-person, outdoor, safely-distanced, masked playdate with her BFF since mid-March. Even though it was chilly and wet, she had a wonderful time.
Recently, I learned about the Spoon Theory and Fork Theory. The basic idea is that each person wakes up with a given number of spoons (energy units) per day and this can vary immensely based on what a person is dealing with in their life. When you spend your spoons you don’t get more until the next day so something might be impossibly spoon-expensive for you but be spoon-cheap to someone who woke up with twice as many spoons. Forks are mental-health units and can be replenished but only if you spend forks up front to do the thing that will give you more forks. So while you might know a shower will give you 10 forks, you have to spend 5 to take the shower and if you only have 3 then no amount of reasoning will help you take that shower. This has helped me think about Sarah differently when she has such a hard time waiting for Anna to arrive. I can suggest biking on Zwift or reading or playing piano and all ideas are met with resistance. Now I understand that she just doesn’t have the forks to do those things at that time. She just can’t. The only things she can do are whining, yelling, grumping, snuggle time, looking at the Sc drawings, and talking about Anna.
I also watched a bit more of the online Son-Rise training and was reminded that when Sarah isms she is doing the best she can to take care of herself. When Sarah doesn’t have the forks to do something other than wait impatiently and ask every minute when Anna will arrive and where Anna is, I have now had some times of responding more comfortably than in the past. I have answered with the most current minute count every time she asks, and I have imagined where Anna might be. When we know Anna is driving here then I talk about various landmarks Sarah knows so she can picture Anna passing them on the way. This seems to help somewhat. It at least helps me not to be resisting where Sarah is. Yesterday was still a bit rough because Sarah had to wait all day, but, given that, she actually did really well.
May you have plenty of spoons and forks.