The April Fool’s joke for us was a notable amount of snow. We made a huge snow mouse that is taller than the kids, and Sarah enjoyed rubbing noses with it. Carl also got to go cross-country skiing.
Sarah is a sparkly, passionate, stubborn child of 17. She has developmental delays and autism. When she was 4 I decided to run a Son-Rise Program, calling it Sarah-Rise. She wasn’t speaking or eating well or potty trained. Eye contact was fleeting, she didn’t play games or play imaginatively. She couldn’t read or write. All of that has changed. I started writing weekly updates so that people could follow our journey.
Sunday, April 4, 2021
April 4: Snow, Easter, and Being in Your Own Category
Sunday, March 28, 2021
March 28: Grief, Magic, and Math
The week has felt overshadowed by grief and loss. I know there has been an abundance of good, but I have also needed the time to just feel sad and sluggish. A college classmate died from brain cancer. A few months ago she was as well as you or I, and now she is gone. I hardly knew her and yet the grief feels deep. It hits rather close to home as I glimpse my own mortality and think of how those closest to her are feeling. The love and support pouring towards her and her family through her journey and passing were incredibly beautiful, making it all the more poignant. Then the mother of a high school friend died suddenly. I didn’t know her well either, but the friend and I were both faculty kids and her father was my teacher, so I feel the sadness on their behalf.
Sunday, March 21, 2021
March 21: Birthdays and The Great Sorts of 2021
When we began the Great Stuffed Animal Sort of 2021, Sarah wasn’t interested because she wanted to play basketball. Carl had been talking about maybe getting a basketball hoop and she was stuck on that idea. So, Carl propped our hula hoop over Sarah’s radiator and the girls tossed their stuffed animals through the hoop to help them decide which to keep and which to give away. If an animal was designated as a donation they threw it into a large bag I was holding. They filled the bag!
Sunday, March 14, 2021
March 14: Shots, Leaks, and Wonderful Surprises
Sunday, March 7, 2021
March 7: Squeak, Bingo, and Sense Memories
Sarah’s school speech therapist nearly fell over from delighted shock when Sarah began their session by asking, “How are you, Ms. P?” Sarah started asking this of people maybe a week or two ago and it is wonderful.
Sunday, February 28, 2021
February 28: School Heartbreaks and Mouse Beds
Amy had one day of in-person school and absolutely loved it. She came home beaming, saying it was the best day of her life. Unfortunately, this coming week her school is all virtual again due to covid precautions. I’m glad they are being cautious and following good procedures, but Amy is sad about it. Part of me thinks it would have been better if the school never even tried to open in person because this is much more of an emotional rollercoaster than it was before. Meanwhile, the teacher who had been suspended and then reinstated has resigned because the administration didn’t agree to do restorative justice and it was going to be on his record that he was suspended for insubordination. Restorative justice is a beautiful process but does require people to own up to what they did and hear how it hurt others. It is also full of love and acceptance and not judging a person based on their worst moments. Parents sent more emails and another petition and had a gathering in the yard outside the school, all asking the school to do restorative justice. This is all heartwrenching and I’m furious with the admins who can’t just admit they handled things poorly. When there is already struggle based on switching to the hybrid model of learning, this is not the time to lose an extremely gifted and experienced teacher. My heart breaks for his students, many of whom said he was their favorite teacher ever and the best teacher they had ever had.
Sunday, February 21, 2021
February 21: Snow Play and *(%# Snow Day
To her great delight, Sarah now has a carseat carrier for her baby doll Chester. She loves pretending that she is bringing Chester home from the hospital, to emulate the pictures of when we brought her home from the hospital.